One of the questions I’ve been asked is what it’s like living with myasthenia gravis (MG). I often tell people the symptoms of MG that I experience but I rarely share the impact that living with myasthenia gravis has on my daily life. Don’t get me wrong, I do a lot of the same things I did before my diagnosis. However, it’s more taxing on my body. It requires more time and more effort. How does myasthenia gravis affect daily life? MG differs a lot from person to person in t[...]
One of the things that we learn about myasthenia gravis (MG) is that it's not considered terminal like cancer. However, when you have MG there's the possibility of going into myasthenia gravis crisis which is life-threatening if not treated quickly and properly. Life with myasthenia gravis (MG) is very up and down. One minute I'm fine and the next I'm not. Things can easily go from bad to worse and before you know it, you're in the middle of a myasthenia gravis crisis. The Differen[...]
I’ve experienced most if not every myasthenia gravis symptom there is. But I’ll never forget the beginning, my first myasthenia gravis symptom that told me “something is wrong, Sis”. Today I’d like to talk about my first myasthenia gravis symptom. My First Symptom My first myasthenia gravis symptom was actually two - ptosis (double vision) and diplopia (droopy lid). However, I noticed the ptosis first because it was making everything blurry. I’ve always been told I h[...]
Today we have a guest post by Anne-Marie D'Acry-Sharpe from Pathways. Chronic pain is defined as pain which lasts longer than 3 to 6 months, and which “persists past normal healing time and hence lacks the acute warning function of physiological nociception". There is a wide range of chronic pain conditions, all with varying symptoms. Even within one individual diagnosis, symptoms can vary from person to person and over time. While the pain itself is certainly a core symptom of[...]
"Oh chronically ill body how I love thee. Let me count the ways…" Said no one ever. At least not any spoonie that I know, ESPECIALLY not me. (Shoutout to Toni Braxton btw.) My chronic illness has done a number on me: mentally, emotionally and physically. The toll it has taken on my body and my love for my body is very high. As part of the Self Love Challenge I wanted to focus on loving the more seemingly unlovable parts of myself: starting with my chronically ill body. Self Love[...]
As a single childless woman over the age of 30, I'm often probed with "well-meaning" but annoying questions such as 'when are you going to married?' or 'when are you going to have kids?'. I mean that's what you're supposed to do right? Find a mate, get married and have kids. But honestly it's not that simple. If you thought the dating game was rigged before, try dating with myasthenia gravis (MG). There are some women who had partners prior to diagnosis and stick with them through it all.[...]