I’ve cancelled all of my plans for the rest of the month with my friends. These are events that I’ve had planned for a while. PSA: I’m not a flaky person. When I agreed to go, I had every intention of doing so. However these past couple of weeks since I’ve returned from Vegas I’ve been feeling “off”. My migraines are back. My insomnia is back. I feel very tired. My arms and legs are heavy and tingling. So I decided to cancel my plans. Sorry for being sick friends. In[...]
One of the “joys” of myasthenia gravis is the copious amount of medication you’ll have to take in order to live “comfortably” or keep your symptoms are bay. The number of therapies are limited but the list is growing. Last time, I started with Mestinon because it was the first medication I was prescribed for my MG. This time I’ll be talking about Prednisone. Why? Well because it was the second medication added to my treatment regimen. After being on mestinon for about a m[...]
This summer I’ve really been trying to live my best life. The freedom that I feel from taking back control is immeasurable. Last month I broke my no travel with mg quarantine with a quick trip to Miami. I felt so good after that trip that I decided to take another trip. This time I took my myasthenia to Sin City. That’s right, Las Vegas Nevada. “I did another one I did another one.” One would think that after my successful trip to Miami, I’d be more than confident in my ability[...]
For as long as I can remember people have told me that I’m “anti-social” or that I’m unapproachable. While I could try to attribute some of this to RBF (resting b!tch face), in all actuality, I’m just an introvert. When in new situations or circumstances, I’m the friend who is sitting back people watching rather than engaging in the moment. I pretty have that same swag on-line /with social media. It’s rare that I go a day without logging in to see what’s being posted but I sparin[...]
I’ve talked about how my social life came to a screeching halt when I was diagnosed with myasthenia gravis. This included vacations and especially vacations to warmer climates because heat seems to aggravate my symptoms. The concept of traveling with mg is hard to wrap your mind around. The application is even harder. Environment factors play a huge part in triggering flare-ups and crises which can be difficult to manage when you’re not home. However, I decided that after a two year hiatus i[...]
We're back with another Pass The Mic Interview. This time we have Jessica P who has graciously shared her myasthenia gravis journey with us. Check out her interview below. Name, Age, City & State Jessica P. , 40, Roanoke, VA How old were you when you were diagnosed with myasthenia gravis? What events led up to the diagnosis? In April of 2016, before my diagnosis, I had thyroid cancer, a thyroidectomy and radioactive iodine. I firmly believe that those treatments started the process o[...]