Nope. I'm not talking about any of your favorite trio combinations like graham crackers, chocolate and marshmallows, Beyonce Kelly & Michelle, Larry, Curly & Mo or even Harry, Ron & Hermione. I'm talking about the three Ms in my life: Migraines Menstruation and Myasthenia Gravis. (*waves bye to all the male readers who cringed when they read menstruation*). Must be nice to just close the browser window and decide "that's not for me", I on the other hand don't have that luxury. T[...]
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Spoonie Life
One of the most difficult parts, for me, (it’s all difficult to be honest) is coping with the weight gain and mg. I’ve put on quite a few pounds due to my inability to workout and the high level of steroids I’ve been taking for the past year. Right now I am somewhere between 185 - 190lbs. Thankfully, I’m a bit on the tall side and it’s distributed pretty well (shoutout to genetics). Before I got sick I was about 145-150 lbs. So that’s 35-40 lbs that I’ve put on in a year. When p[...]
I had a follow up appointment with my myasthenia gravis specialist today. It didn’t go exactly the way I had hoped but overall it went pretty well. My main focus at this point is to get off the strenuous medication regimen we’ve been using to keep my MG at bay. So you can imagine that I was a tad (very) disappointed when I was told that my medication levels would not decrease again until the fall. Logically it makes sense. With the temperatures rising, lowering my medications would be risky[...]
Most people love summer. It means cookouts, crabs, amusement parks, vacations, day parties and the like. What's not to love? Now that I've experienced a Myasthenia Gravis summer- A LOT. I think it’s safe to say that summer is here! For those with a blossoming social life, it’s lit (as the kids say). Every weekend day there is something to do - except if you have a myasthenia gravis. Pre Myasthenia Gravis Summer Even as a child, I was never a fan of being hot. But I always managed t[...]
No. This is not some sappy note to the love of my life. This isn’t a tale of romance or an ode of affection and adoration. It’s just a milestone. One year as an MGer. Since you can’t catch MG like a cold or the flu (facts about MG), you’re born with it. So my MG has been in here all along, waiting for the moment to strike. It’s just been one year that I’ve labeled an MGer. If I had to actually write something to my MG, I imagine it’d be quite reminiscent of the spoken letter from A[...]
"Deliver us serenity. Deliver us peace. You know we need it." Kanye West certainly is no mental health role model. But even a broken clock is accurate twice a day right? Lately, I've been trying to trying to focus on acceptance. I won't say that I am in denial about anything that has or is happening to me. But I most certainly have not embraced this. Up until this point in my life, I have always been able to make the necessary changes or alterations in my life when I saw fit. I've never not be[...]