As a single childless woman over the age of 30, I’m often probed with “well-meaning” but annoying questions such as ‘when are you going to married?’ or ‘when are you going to have kids?’. I mean that’s what you’re supposed to do right? Find a mate, get married and have kids. But honestly it’s not that simple. If you thought the dating game was rigged before, try dating with myasthenia gravis (MG).
There are some women who had partners prior to diagnosis and stick with them through it all. Then there are some who’s partners couldn’t handle the journey and left them. But for those single snowflakes like me, the pressure to secure a good mate is on. How does one actually go about dating with myasthenia gravis?
Having “the talk”
How do you tell a guy (or gal) that you’re crushing on about your chronic illness? Depending on where you are in your chronic illness journey you may not be an open book. I recall not telling anyone but my closet friends and family (so like 5 ppl) that I had myasthenia gravis.
It was a secret. Have you ever had to tell basically a stranger your most sacred secret?
You’re revealing one of the least likable traits about yourself. I tend that save those for after I’ve sealed the deal but when dating with myasthenia gravis, I’ve found that laying the cards out on the table upfront is the best policy.
Explaining the Illness
After you break the news, (if they didn’t ghost you) you then have to explain everything. How it works, how it impacts you, what they should do in case of xyz etc. Just thinking about “breaking in” a new partner is exhausting.
Some will run for the hills and good riddance. They couldn’t handle the spoonie life. This allows you to weed out the weaklings and find the needle in the haystack that’s worthy of dating.
But after a few have ghosted you, it can be cumbersome to want to continue to try dating with myasthenia gravis. Who wants to continue to put expose themselves? That’s extra stress I don’t have time for.
Awkwardness of Dating with Chronic Illness
They say you laugh to keep from crying. If that’s the case, dating with myasthenia gravis is my personal form of comedy. Imagine being out on a date with a guy. Everything thing is going perfectly and then a flare up strikes.
You’re gazing into each others eyes (*cue sappy love song*) and then your eyelid starts to droop. Or what happens when you’re mid conversation and your speech starts to slur. Oh and nothing says sexy more than choking on the appetizers.
Thinking of all of the things that could go wrong on a date (even with a partner that knows about your illness) can be stressful. Even though I’m chronically ill, I just want to have a normal fairytale date with my prince charming like every other woman. Nah mean?
Fatigue
Let’s say you’ve finally struck gold. Your partner is cool with the diagnosis, understanding of the symptoms and has been great at learning information about myasthenia gravis (or whatever your illness is). They decided they are in it for the long haul.
But actually dating becomes the issue because of the chronic fatigue. It’s date night but you’re too tired because you went to work today or because you took a shower today. You have to postpone again.
Even though they are understanding, there is guilt that accompanies having to disappoint my loved ones. How many times can you blow off date night before bae chucks the idea of ever having a date with you? It’s not fair to them.
Sexy Time?
Intimacy is a big part of a relationship. Thanks to my prednisone weight, I’m now having to put aside my own body criticisms and pray that my medications haven’t completely depleted my drive while making sure my energy is up and symptoms are down.
If I didn’t have energy for date night, do I really have energy / spoons to do the do?
Easier to Be Alone
Chronic illness can be a burden on the spoonie on those around them. So it’s wise not to enter into a relationship haphazardly. Rather that stress out trying to manage all that comes with dating with myasthenia gravis some resolve to live life devoid of any romantic attachment.
If you don’t date, you don’t have to worry about all the things that go wrong. You wont get attached and then have the wind knocked out of you in disappointment when they ghost you.
But is that really the answer?
I’m not a dating guru by any means. If I didn’t have bae, I’d probably be one of those folks who believe that it’s easier to be alone. But I reached out to a few women on social media for some tips on dating with myasthenia gravis:
- Be Upfront about your illness. If the sucker is going to leave, it’s better they do it sooner rather than later.
- Plan for activities. If I know I have a date coming up. The week before I’m saving all my energy for it. Sometimes flareups can’t be avoided but do what you can.
- Accept the love and help. If someone is willing to come into your life and ease your burden because they care for you, let them. Don’t be too proud and push them away.
- Be creative. Learn to find new activities and hobbies you can share in together that are spoonie friendly.
- Love yourself first. Ok I threw this one in here myself. I know alot of people who suffer from low selfesteem as a result of chronic illness. So you may be willing to settle for less than just because someone is willing to “put up with” your chronic illness. Nope! If you love yourself, you will set and keep standards so that anyone who is in your life still values you – illness or not.
Who’s ready for some loving? Check out this video on what’s it like dating a spoonie.
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Morgan Greene is a Maryland chronic illness and holistic wellness lifestyle blogger. After years of struggling with her autoimmune disease diagnosis, Myasthenia Gravis, she decided to combine two of her favorite things…writing and informing others
IsWasWillBe.com was created to have unfiltered discussions about having a chronic illness. It has since become a place to inspire and create a sense of community among women with autoimmune diseases. Morgan loves trying new things and sharing with other spoonies how to live an ill life on their terms.
When she’s not blogging she is probably reading a book, drinking a Coke Slurpee or listening to music.
Beautifully said! As a fellow single MG’er in my thirties, I can relate to your experience. Thank you for sharing your journey. ❤️