For those of you that are new to IWWB, Pass the Mic is a way to give other spoonie warriors a platform to share their chronic illness journeys with each other. Sharing helps us feel a little less alone in our battles. Wanna be featured? All you have to do click here.
This month’s PTM warrior is Samantha. She is here to share her experience as an endometriosis warrior.
So what’s your name and where are you from?
Samantha D from Atlanta, GA
How old were you when you were diagnosed with Endometriosis? What events led up to the diagnosis?
I was diagnosed at 24 years old after experiencing debilitating periods, heavy bleeding and clots, and a near codeine overdose experience.
What has your treatment plan been? Which medications have you had the most success with?
I’ve tried a plethora of birth control treatments and Lupron Depot, a chemotherapy treatment. None of them worked for me. They made my cycle 90 days for 9 months out of the year.
Pain medications do not work for me either.
Besides the symptoms, what’s the most difficult part of having a chronic illness for you?
Getting past the anxiety of my period has been really difficult although it is not as bad as it was before.
My body is so used to having a bad period that when it becomes that time my body automatically tenses up. I’m still working through that.
What’s the biggest impact Endometriosis has had on your life? Have you had to make any changes to your everyday life?
The biggest impact I’ve had from Endo is being able to step and walk into my purpose as an advocate and educator.
I’ve had to change my entire life to be able to manage Endo like my diet, so I no longer eat meat or dairy. I no longer take forms of Western medication, everything is holistic with herbs and aligning my body, mind, and spirit.
Besides physically what other effects has Endo had on you (mentally, emotionally, spiritually, financially, etc)? How have you worked through these issues?
Endo has affected all areas of my life.
Dealing with infertility, relationships, working with the disease to put on that I’m not sick when really I am.
Things that I’ve leaned on are a lot of prayer, spiritual guidance, and finding and learning my womb. Meditation has helped me to work through my issues.
Who or what has helped you the most in coping with your diagnosis?
My spirituality has helped the most.
Being able to connect with my womb, which is a women’s brain, her intuition. I’ve learned when we move past trauma, the issues we experience with our wombs will heal along with the trauma.
What goals have you been able to accomplish in spite of your Endometriosis diagnosis? What’s next for you?
Being able to life everyday, getting my period to a healthy place and a place of normalcy.
To continue educating the world through my advocacy.
Think back to your diagnosis day. What advice would you give to yourself or someone newly diagnosed ?
It’s not your fault and you’re not crazy for what you’re experiencing.
Any other comments or words of wisdom you want to share?
Be your biggest advocate, even when no one is listening. Only YOU how YOU feel. Don’t let anyone diminish that.