Flu season is here and with a new vengeance. The coronovirus COVID-19 has taken the world by storm. I’m sure I’m not the only spoonie worried about this epidemic. Navigating flu season with an autoimmune disease is tricky. Had to do some research on the best non toxic disinfectants to kill germs. More Susceptible to the Flu Anyone with an immune system that is not fully developed or weakened are more vulnerable to flu viruses and flu complications. This includes children and infan[...]
Another day, another pill. At least that’s how it was beginning to feel for me in my treatment journey. Let's set the scene. As I was rounding my 5th month with MG, my symptoms were still not settling down. We had to step it up my treatment plan. Enter Cellcept stage left. To recap, I was already on Mestinon 4 times a day, taking 60mg of prednisone daily and doing IVIg. You can click those links to read about those if you haven’t already. I digress. My heart nearly broke when my neurologi[...]
I’ve heard of bunch of sayings over the years. “A good man is hard to find.” “Good help is hard to find.” But I say “a good doctor is hardest to find” especially when you have a rare autoimmune disease like myasthenia gravis (MG). I can not stress the importance of having a good doctor to help you navigate these murky waters. Words cannot express the feeling when you know that your doctor is fighting with you and against you to help you have a better quality of life. My Strug[...]
Fear: a distressing emotion brought about by impending threat danger or pain; concern or anxiety; something that causes feelings of dread or apprehension. I’ve talked about fear before but it seems it has come back to haunt me. This past weekend I was out with my friends and I was confronted by one of my greatest fears. No, I don’t mean a giant bastard bug or some hybrid beast. My friend’s husband looked at me and said “you have a lazy eye or something?”. That’s right! My fear[...]
I recently watched Everything, Everything and overall, I was very pleased with the movie. It is a romance/drama depicting the life of a young girl with a severe autoimmune disease that dramatically inhibits her lifestyle. Long story short, she meets a boy and starts to rebel against everything: her mom, her lifestyle restrictions, etc. I’d say the cast of the film was pretty solid and well balanced. The majority of my accolades would go to Amandla Stenberg who gives a strong performance as[...]
Hey y'all. Today we're going to do something new. My vision for this blog goes beyond just talking about myself day in and day out. I want to create a platform for everyone to share (and find) commonalities. One idea I've had is guest posts from others with autoimmune diseases. I've found writing to be therapeutic. All the benefits of seeing a shrink without the copay. Thus the birth of Please Pass the Mic. So the day has finally come. I have my first guest bloggers and it's by none o[...]