Caring for a child with the common cold or flu is one thing. But imagine being the parent of a chronically ill kid. No parent wants to hear "Your child has been diagnosed (insert chronic, potentially life-threatening illness here). I heard stories and seen videos of parents who have a rush of adrenaline and perform amazing rescues when their child is in an emergency situation. But what if every day is a potential emergency situation? When your child has ongoing needs, your relate[...]
Y'all know I love a good quote. So here are a few self-care quotes I found encouraging during this month. I dedicated the month of September to self-care. Not just because Self Care September sounds cute but because I was in need of TLC just like any everyone else. Self-care isn't all manicures and massages. It looks different for everyone. Yes, those are nice treats for ourselves but in essence, self-care is about putting forth the effort to make yourself a priority and tending to the ar[...]
If I can be transparent with you for a minute, I will tell you that I struggle with self love. I don't hate myself by any means but I know for a fact that I am my toughest critic. I don't always feel as attractive as I should or comfortable in my own skin. These past three years post diagnosis have placed a huge strain on me both mentally and physically making self love even more of a challenge. As I've grown to accept my diagnosis and learned to live with it instead of fighting against[...]
I’ve cancelled all of my plans for the rest of the month with my friends. These are events that I’ve had planned for a while. PSA: I’m not a flaky person. When I agreed to go, I had every intention of doing so. However these past couple of weeks since I’ve returned from Vegas I’ve been feeling “off”. My migraines are back. My insomnia is back. I feel very tired. My arms and legs are heavy and tingling. So I decided to cancel my plans. Sorry for being sick friends. In[...]
“Boy meets girl. Girl perfect woman.” They fall in love, get married, pop out some babies and live happily ever after. It’s a story as old as time. While most love stories aren’t as cookie cutter or by the book, the essence is still there right? Well not if you have MG (or any chronic illness for that matter). Vday Valentine’s day (aka V Day) is upon us. I thought this would be the perfect time to highlight the ups and downs (ok, mostly downs) I've had in the love department. Th[...]
I decided to make this month Self Care September. I really wanted to get a better understanding of what self care is as well as develop a self care regimen for myself. If you missed my posts about self care you can find them here, here and here. I wanted to end the month by sharing what I did in the name of self care: I got a full body massage. A couple of years ago I received one of the best full body massages ever by a woman with her own salon not far from my house. Much to my dismay she move[...]