If you have myasthenia gravis, one of the treatments your doctor may suggest is a thymectomy. Just six months into my diagnosis I was faced with the decision of whether to have a thymectomy or not. At that time, I’d never had surgery before. Of course, many people had opinions and most were against the decision. But this was possibly the first of many decisions I had to make for myself as it pertained to my health. It required me to connect with my body and trust myself to do what was in[...]
Another day, another pill. At least that’s how it was beginning to feel for me in my treatment journey. Let's set the scene. As I was rounding my 5th month with MG, my symptoms were still not settling down. We had to step it up my treatment plan. Enter Cellcept stage left. To recap, I was already on Mestinon 4 times a day, taking 60mg of prednisone daily and doing IVIg. You can click those links to read about those if you haven’t already. I digress. My heart nearly broke when my neurologi[...]
I’ve heard of bunch of sayings over the years. “A good man is hard to find.” “Good help is hard to find.” But I say “a good doctor is hardest to find” especially when you have a rare autoimmune disease like myasthenia gravis (MG). I can not stress the importance of having a good doctor to help you navigate these murky waters. Words cannot express the feeling when you know that your doctor is fighting with you and against you to help you have a better quality of life. My Strug[...]
Annnd we’re back with another edition of Pills and Potions. We dug in to Mestinon. We deep dove into Prednisone. Now it’s time to drip into IVIg. If you haven’t read the prior posts regarding my myasthenia gravis treatments, you should definitely check them out. But without further ado let’s get into it. It had been a month since my last appointment with my specialist. I was maxed out on Mestinon (taking 4 60mg pills during the day and a 180 mg pill over night) and taking 60mg of pred[...]
One of the “joys” of myasthenia gravis is the copious amount of medication you’ll have to take in order to live “comfortably” or keep your symptoms are bay. The number of therapies are limited but the list is growing. Last time, I started with Mestinon because it was the first medication I was prescribed for my MG. This time I’ll be talking about Prednisone. Why? Well because it was the second medication added to my treatment regimen. After being on mestinon for about a m[...]
A couple months ago, I had my first cryotherapy session. As you know, I’m constantly looking for natural and less harsh methods to assist my body in being the best it can be. You may also know that I have an affinity to high priced things. So when I found a groupon for it, I knew it was a sign. I had to try it. What is Cryotherapy? Cryotherapy is basically a fancy way of exposing your body to very low temperatures. The process is pretty simple. You get inside a giant tank. It fills with dry[...]