Tips for Slaying Summers with MG

Summer 2018 has been good to me. I’ve re-acquainted myself with doing things other than sitting in the house watching Netflix. So far, I’ve gone to the beach, a water park, ate crabs on a pier and taken two trips to warm destinations (Miami and Vegas). Let me tell you, it feels good to be active again. I feel like a normal member of society able to enjoy summer activities. This is a big difference from my previous summers with MG. This summer’s experiences have been mostly positive. While I’d like to say its the result of remission, the reality is I did tons of research and a lot of trial and error since diagnosis to figure out how to do my normal activities. All it takes is a little adjustment, effort and maybe a little investment.

1. Water, water, water

On average I drink about 3 liters of water a day. My favorite water is Deer Park. It isn’t sold everywhere so when I travel, I drink just enough to keep me from getting dehydrated. Drinking water helps to keep you cool and helps regulate body temperature. If you’re going to be outside, go ahead and get in those extra ounces.

2. Cooling Vest

When I started thinking about going Vegas, a member in one of my support groups recommended that purchase a cooling vest. It’s basically like wearing a cold compress. I think this serves people who will only be out in the heat for short periods of time because once it melts, it’s gone.

3. Electric Scooter Rental

I know I know. A scooter! Really? Yep. A scooter. No it’s not the coolest thing to pull up to a social event on a scooter. You may picture yourself looking like Dr Nefario (Despicable Me.. google it). But a scooter could be a life saver. It will allow you mobility and help preserve that energy. Just embrace it. Maybe even pimp your scooter out. Let me tell you I wish I would have found me one to rent while I was walking that Vegas strip. My legs were tired.

4. Misting Fan

Sometimes you’re going to be somewhere and the AC isn’t pumping. Or maybe you’re at an outdoor event. Having a fan that is not just blowing hot air at you but also sprinkling a little mist of cool water can be quite refreshing. Think about all the amusement parks that have those misting stations. That’s because it works. You’ll have the advantage of a personal one!

5. Research best times of year weather

The natives and the research have told me that June and July are probably when Miami and Vegas were are their peak temperatures. If I had to do it over again, I’d choose maybe a March/April or Sept/Oct time period to visit those places. But you have to also take into consideration tropical storm seasons or any other yearly recurring natural disasters they may have.

So those are my thoughts on surviving the summers with mg. I’m not at all saying that it’s easy to do or these modifications are fool proof. But it’s definitely worth it if you have MG and don’t want to spend your summers as a mole person. I feel so grateful for being able to do a lot of my favorite activities. It makes the outlook for summers with MG seem little less lousy.

Morgan Greene is a Maryland chronic illness and holistic wellness lifestyle blogger. After years of struggling with her autoimmune disease diagnosis, Myasthenia Gravis, she decided to combine two of her favorite things…writing and informing others was created to have unfiltered discussions about having a chronic illness. It has since become a place to inspire and create a sense of community among women with autoimmune diseases. Morgan loves trying new things and sharing with other spoonies how to live an ill life on their terms.

When she’s not blogging she is probably reading a book, drinking a Coke Slurpee or listening to music.

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