Trying to Lose Weight with Myasthenia Gravis

Guess what?! I managed to lose weight with myasthenia gravis. I’m so excited. Actually, I’m a little underwhelmed. But let’s shut down those negative Nancy vibes. *Rewinds* I managed to lose weight with myasthenia gravis.  Can you believe it? I can’t. 

If you’ve been following along for a while, you already know that one of my most hated limitations of having MG is that I had to quit exercising. Also, as I talked about here, prednisone caused me to blow up like a balloon.  I’ll admit that some of the weight gain may have been due to me eating my feelings and being depressed from diagnosis but pre-diagnosis I could eat like a man and still slide into my favorite skinny jeans with room to spare.  I remember the day my thighs busted through my jeans at work. Can you say mortified? Needless to say to be able to drop a few lbs is celebratory. 


I’ve done the research and spoken with my neurologist about it. There are many benefits to moving and exercising with mg. Moving can be anything: dancing, yoga, swimming, bike riding, walking. It doesn’t need to be weightlifting in the gym or training for a marathon. You just need to find the right movement for where you are in your journey.  

While some people think it’s vain to care about what you look like while ill, I think of it as a form of self-care. (Also of course they think it’s vain because the changes are happening to them). Anyway, I digress… I love my body (most of the time). More importantly, I only have one. To sit back and be complacent with it deteriorating and changing for the worst is a crime against myself. As I get to know my body more, I know what it’s capable of and what feels right.  


I’ve tried getting back into my fitness regimen many times of the past two years and each time I failed. Not due to lack of trying or will power. It was moreso I was doing too much too soon. I wanted it so badly I could taste it and I was willing to do whatever it took. That desperation translated into not listening when my body said enough. I’d do maybe a week of working out before my symptoms were flaring up and I was in borderline crisis. Those physical setbacks catapulted mental and emotional setbacks which can be equally as damaging. MG was winning.  I felt defeat every time I tried to lose weight with myasthenia gravis. 

This time was different though. I approached it in a new way. Instead of telling myself that I had to lose 10 lbs this month I told myself to just show up. Just do what you can. I may have planned to do 3 sets of 10 and had to modify and do 8. Yes my goal was with lose weight with myasthenia gravis but that wasn’t my focus. I channeled all my energy into showing up for myself and encouraging myself. I remember almost tripping and falling the first time back on the treadmill. Previously I would have just stopped and went home. I just slowed down and decided to walk the remaining time instead of run.  

Moving Forward 

Y’all already know I’m going to keep going. With less than 3 months to my bday I’m determined to enter the next decade of my life the best version of myself I can be. My method to success as I try to lose weight with myasthenia gravis is keeping in mind the “with mg” part. That’s a major key (as DJ Khaled would say).  Perspective is key.

Nope I didn’t have a major physical transformation this month but you know what? I did more than I did last month and next month I’ll outdo this month. If I keep it up I’ll be IG baddie /snack level in no time.



Morgan Greene is a Maryland chronic illness and holistic wellness lifestyle blogger. After years of struggling with her autoimmune disease diagnosis, Myasthenia Gravis, she decided to combine two of her favorite things…writing and informing others was created to have unfiltered discussions about having a chronic illness. It has since become a place to inspire and create a sense of community among women with autoimmune diseases. Morgan loves trying new things and sharing with other spoonies how to live an ill life on their terms.

When she’s not blogging she is probably reading a book, drinking a Coke Slurpee or listening to music.

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